understanding
(By Cathy Garrott)
It’s interesting how people with PD tend to bond immediately. A former student of mine (30 yrs. ago) goes to the same rehab center that I do and recently, because of a schedule change, we have been in the same group exercising in the pool once a week. Her husband told me last week that since she has been in my group she has been doing MUCH better physically and mentally/emotionally as well.
In thinking about this woman (who is 10 years older than I) she and I were not the best of friends when she was my student, so I didn’t feel particularly “close” to her. But after I was diagnosed with PD in August of last year she suddenly became very interested in renewing our contact. Now she looks forward to coming to rehab and walking in the pool with me. She has opened up her heart and shared things I would never expect to know about her. It’s like God just opened the door and gave me a grand welcome into her life.
She told me that before I came she felt as if no one really understood the struggles she was dealing with, and going to rehab was so emotionally stressful that she could not see the physical benefits from it. But now she feels that she has a companion in the struggle and she looks forward to rehab. Before she did not want to walk, once she got into the pool, because her pace was so much slower than the others and she was embarrassed. Now I walk beside her and encourage her to keep moving … and she does because she knows I’m struggling with the same foe.
We are trying to climb this same mountain, known as PD, and sharing with others the victories we have had is an encouragement to them as well. Keeping our mental focus looking up instead of inward enables us to make the next leg of the journey with hope instead of despair. Heart to heart we can overcome the psychological barriers and help others in the process. This way, EVERY day can be Valentine’s Day!!!
The train was rumbling southeast from Berlin toward the Polish border. The one week course in Berlin had concluded and I and several of my fellow graduate students from Penn were on our way to a course on emerging economies. We would begin the next day with a lecture at Jagiellonian University in Krakow, where Copernicus had studied. I had found a non smoking compartment on the train and was pleasantly enjoying the company of myself and my novel. At the Polish border an older gentleman entered the compartment with brown bag and small carry on in tow. I said “hello” as he sat across from me wearing a friendly smile with a look of contentment. I introduced myself and asked if he spoke English. He shook my hand as he blurted out “Frederick”. It was obvious that the English language was not at his command nor was Polish among my verbal or written skills. As we traveled together those several hours, we engaged in the process of getting to understand the other’s language. I pulled a notebook from my case and began writing English words to identify on object we had passed on the train. He would respond by writing the word in Polish and then verbally repeating it. In a short while we were communicating, not in language as much as in understanding. Language became incidental to the communication. He looked at his watch, reached in his brown bag and presented me with an apple and a salami sandwich. I thankfully declined as he insisted I share with him as he brought forth another apple and sandwich from the bag. I asked him why he had two of each. He told me his wife had prepared his meal for the journey and had included a second one in case he had an opportunity to share with someone else. As we consumed the humble feast, he was content that the purpose his wife had intended had been fulfilled. As the train pulled to a stop in the small village just a few miles north of Krakow, Frederick stood and enthusiastically shook my hand saying “goodbye” and “nice to meet you” before departing the train. I learned that day that communicating with others requires first a desire for that communication followed by an active pursuit of understanding from the other’s perspective. Learning to live with chronic illness also requires that one “listen” to what is being communicated by the affected member(s) and gain understanding of what is being said from its perspective. It may be trying to tell us something to which we need to respond in a way differently than habit would dictate. Learn to understand your body’s language.